eHealth Standards and Profiles in Action for Europe and Beyond

eStandards Final Conference

 

Hosted by CEN/TC 251, the European Committee for Standardization

26-27 June, 2017 Ave Marnix 17, Brussels

Presenting

Roadmap for sustainable and collaborative standard development:

Recommendations for a globally competitive Europe

Preliminary Program

Monday June 26, 2017

 

10:30-11:00 Welcome Address

            Co-chairs: Geert Thienpont (Ramit) & Catherine Chronaki (HL7 Foundation)

·       Tapani Piha, European Commission, DG SANTE

·       Christoph Klein, European Commission, DG CNECT

 

11:00-12:00 eStandards Project: introduction and objectives

·       Overview of the eStandards vision and achievements Catherine Chronaki

·       What is the eStandards roadmap and how you can help shape it? Robert Stegwee

 

12:00-12:45 eStandards coCreation-Governance-Alignment (CGA) framework Petra Wilson

 

Lunch 12:45-13:30

 

 

 

 

13:30-15:00 – The Health System & Market perspectives

Co-chairs: Vincent van Pelt & Manne Andersson

 

eStandards Guideline for eHealth Interoperability practitioners: today’s best practice Vincent van Pelt (10 min)

 

13:40-14:00 Lightning Interventions (90 sec/1 slide)

·       Stephan Schug, EHTEL

·       Karima Bourquard, IHE Europe

·       Valentina Lisi, HOPE

·       Pantelis Angelidis, VIDAVO

 

14:00-14:45 Breakout session

Rapporteurs: Stephan Schug, Karima Bourquard, Pantelis Angelidis, Vincent van Pelt

How do we move from current best practices to eStandards for digital health?

 

14:45-15:00 Feedback from Rapporteurs and Discussion

 

15:00-15:30 Coffee break

 

15:30-17:00 – The Citizen & Workforce perspectives

Co-chairs: Dipak Kalra and Morten Bruun-Rasmussen

How can we create, develop, use, and quality test health data to transform the health sector?

How health data can mediate and improve communication for patients and their health team?

 

Content Creation and Quality Management for Interoperability Testing Dipak Kalra and Morten Bruun-Rasmussen (10 min)

 

15:40-16:10 Lightning Interventions:

·       Celia Boyer, HON

·       Mary Cleary, ICS, JAseHN

·       Michael Johansen, MedCom

·       Michael Noehammer, Austrian Chamber of Physicians

·       Ines Hernando, COCIR

·       Vincent van Pelt for Bert Mulder, Haagse Hogeschool

 

16:10-17:00 Discussion

 

19:00-22:00 Invited Dinner: KWINT, Mont des ARTS 1, Brussels

 

 

Tuesday June 27, 2017

8:30-8:45 Welcome – Summary of Day #1 - Dedication of eStandards Roadmap.

Co-chairs: Catherine Chronaki and Robert Stegwee

Marcel Heldoorn, Dutch Patient Federation

 

8:45-9:30 Roadmap objectives for the four Focus Areas

Robert Stegwee and Petra Wilson

 

09:30-10:45 – Identification of medicinal products Roadmap Focus Area

Co-chairs: Shirin Golyardi, Christian Hay, Jos Devlies

What are the next steps in the identification of medicinal products and how do we take them?

How can we bridge regulatory side of medicines with the clinical world of health care delivery?

 

Introduction to the Identification of medicinal products Focus Area, Christian Hay & Jos Devlies (10 min)

 

09:40-10:00 Lightning Interventions

·       Elena Petelos, Public Health Specialist and Regulatory Expert

·       Manne Andersson, Swedish eHealth Agency

·       Jos Devlies, Custodix

·       Christian Hay, GS1

 

09:50-10:30 Breakout Session

Rapporteurs: Elena Petelos, Shirin Golyardi, Christian Hay, Jos Devlies

What are the urgent CGA actions moving forward? What are the artefacts that we need to focus our attention?

 

10:30-10:45 Discussion: Findings and Synthesis

 

10:45-11:00 Coffee Break

 

 

11:00 – 12:30 Patient Summary for Emergency or Unplanned care Roadmap Focus Area

Co-chairs: Stephen Kay, Giorgio Cangioli, Karima Bourquard, Vincent van Pelt

How can the patient summary be used productively for emergency or unplanned care, serving as a window to a person’s health data?

 

Introduction to the Unplanned and Emergency Care Focus Area. Giorgio Cangioli, Stephen Kay (10 min)

         

11:10-11:30 Lightning Interventions (90 sec/1 slide)

·       Marcello Melgara, eHDSI Member States Expert Group Semantic Task Force Organization WG & LISPA

·       Christof Gessner eHDSI Member States Expert Group Semantic Task Force Architecture WG & Gematik

·       Karima Bourquard, IHE Europe

·       Vincent vanPelt, NICTIZ

·       Catherine Chronaki, HL7 Foundation

·       Michael Noehammer, Austrian Chamber of Physicians

·       Mary Cleary, ICS & JAseHN

 

11:30-12:15 Breakout Session

Rapporteurs: Stephen Kay, Marcello Melgara, Christof Gessner, Mary Cleary

How can patient summaries delivered in the eHDSI will be protect all European citizens?

What are the artefacts that we need to focus our attention?

What are the urgent CGA actions moving forward?

                       

12:15-12:30 Discussion: Findings and Synthesis

 

12:30-13:00 Lunch

 

13:00-14:15 - Chronic Disease Management Roadmap Focus Area

Co-Chairs: Robert Stegwee & Catherine Chronaki

How do we bring the chronic disease patients at the center of their care to work towards their life goals with support from their health team?

 

Introduction to the Chronic Disease Management Focus Area, Robert Stegwee (10 min)

 

13:10-13:30 Lightning Interventions

·       Pantelis Angelidis, VIDAVO

·       Camilla Torlasco, ESH

·       Estelle Huchet, AGE Platform

 

13:30-14:15 Discussion

 

14:15-14:30 Coffee Break

                               

14:30-15:45 Rare Disease Networks Roadmap Focus Area

Co-chairs: Petra Wilson, Victoria Hedley, Zoi Kolitsi

How do we connect the rare disease networks creating value and economies of scope that benefit research and patient communities?

             How patient summaries would make sense for rare disease networks?

 

Introduction to Rare Disease Network Roadmap Focus Area, Petra Wilson & Victoria Hedley(10 min)

           

14:40-15:00 Lightning Interventions

·       Zoi Kolitsi, eHealth Strategist

·       Victoria Hedley, RD-Action

·       Suzanne Hollmann, CHARM

·       Michele Thonnet, JAseHN, eHN

·       Dipak Kalra, EuroRec

        

15:00-15:45 Discussion

 

15:45-16:15 Closing Panel: Carrying the Roadmap forward

Policy perspective: Michele Thonnet, Tapani Piha, Manne Andersson

SDO perspective:Robert Stegwee, Catherine Chronaki, Charles Parisot

What policy initiatives can change our ways of working with eHealth interoperability practitioners to make sure that large-scale eHealth deployment can take place in a sustainable way?

How do we make sure that we benefit from digital health tools in standardization in terms of collaboration, implementation and deployment?

How do we ensure collaboration and coCreation across initiatives, both as SDO’s as well as from a policy perspective?