The Italian National Rare Disease Registry (RNMR), was established by law in 2001 to collect data on rare diseases to improve RD healthcare. In view of the establishment of European Reference Networks, RNMR is providing information on the activity of Centers to be endorsed by the Italian government. The RNMR platform is a web service that is provided to some Italian regions for the inclusion of cases of rare diseases, in accordance with ""Stato Regioni"" agreement of 2007 in which has been…

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